Sibling Collection

This guide is for adults who have a sibling with a disability who want to learn how to start or navigate sensitive conversations about the future with their family members. If you are involved in the care or well-being of your sibling with a disability—or anticipate you will be in the future—you are in the right place. This guide will provide you with information, tips, and resources for having productive discussions with your family about the future.

This guide is for adults who have a sibling with a disability and want to learn more about mental health. If you are involved in the care or well-being of your sibling with a disability this guide will provide you with information and resources to support not only their mental health but also your own. As you and your family members get older, you may find yourself taking on more of a supportive role in your sibling with a disability’s life. With that in mind, there may be questions about their mental health that you need answered. This guide will help you identify what questions to ask and where to go for additional information and support.

Being a caregiver of those with intellectual disabilities and/or those with developmental disabilities can be both rewarding and challenging. This toolkit is designed to provide families with strategies to help individuals navigate their needs and balance them with the needs of their loved one. There is a section just for sibling caregivers as well as activities to allow you to make plans.

This presentation will focus on the support available to families to talk about autism with their children who are siblings of the child with a disability. We will discuss how to approach the conversation surrounding autism, how to include the siblings and their feelings. The last portion of the webinar will include a panelist of siblings that will be explaining their experiences and be available for questions.

During these past months of the COVID-19 pandemic, many of us who have siblings with a disability have been feeling worried, stressed, and guilty (visit our infographic here). Our siblings with disabilities have had their routines and activities disrupted, they have not been able to visit family and friends, they are worried about getting sick; and we have been anxious that they have not been able to understand all the current public health restrictions.

The researchers surveyed mothers who have both typically developing children and children with autism, as well as mothers whose children are not diagnosed with autism. Questionnaires addressed sibling psychological adjustment, broader autism phenotype in siblings, sibling relationship quality, maternal depressive symptoms, and the impact of the child with Autism on the family.

This study examined perspectives of youth and adult siblings of individuals with autism. Administered questionnaires and interviews were conducted in exploring elements of this sibling relationship.

This article summarizes a study that found some families have multiple children with autism. Researchers suggest a genetic link to autism. This experience of having more than one child with autism can be complex as the experiences and needs of everyone with autism are unique