Impossible Conference Research Collection
The AIDE Canada Impossible Conference Research Summaries - AIDE Canada has collaborated with self-advocates and families to have them describe the most profound, unsolvable problems faced by the autism and/or intellectual disability community. We will be discussing these problems at the AIDE Canada 2023 "Impossible Conference".
How do we ensure the health needs of older autistic adults are met
Autistic seniors may be at increased risk of certain diseases associated with aging. They are also less likely to have their needs met in healthcare and residential care settings. Unfortunately, there is limited research in this area, and findings from different studies are mixed. This literature review summarizes what we know and explores strategies to better support individuals and their families. Increased research and collaboration with older autistic seniors are recommended.
Supporting the development of personal skills in their child/family member
This toolkit discusses supporting the development of personal skills in a child/family member (Values, personal boundaries and boundary setting, safer and healthy decision-making, healthy communication, self-advocacy, emotional regulation)
Supporting Children with Developmental Disabilities in the ER: A Course For Paediatric Emergency Department Staff
People who work in the Pediatric Emergency Department will treat children and adolescents who may have developmental disorders like autism and/or intellectual disabilities. Some may have challenges with communication, difficulty registering or tolerating pain, or be experiencing a mental health crisis. In this course, a paediatrician, psychiatrist, triage nurse, and parent all provide their perspectives on how best to support children and adolescents with developmental differences during visits to the ER.
QuickStart Nova Scotia Helping Parents Get a Head Start
Quickstart nova scotia is a parent-mediated coaching program designed to empower caregivers of toddlers with a suspected, provisional, or confirmed diagnosis of autism to teach and support their child’s development. The interdisciplinary team of behaviour analysts, speech language pathologists, occupational therapists and parent coaches will share the program’s use of the early start denver model intervention to provide a naturalist teaching framework that is flexible, accessible, collaborative, and supportive for the family.
Supporting Knowledge Acquisition in Areas Reflective in Comprehensive Sexuality Education Toolkit
This is the third toolkit in the Sexuality Education Resources for Caregivers project. The project aims to develop accessible comprehensive sexuality education resources that support the needs of caregivers of Autistic people, Autistic individuals, and others. These resources will explore how there is a gap in access to comprehensive sexuality education for Autistic people and for their caregivers to support with sexuality education. Please note: this toolkit is meant for an adult audience and contains information on the definitions of some words related to sexuality.
Understanding what is happening inside your body: Interoceptive Training for All Ages
Some people with neurodevelopmental differences have a hard time noticing signals from their bodies or being able to tell what they mean. Interoception is the sensory system that lets us know when we need to eat, drink water, or use the washroom. It is also the sensory system that allows us to know when we are becoming upset or anxious. Autistic researchers and colleagues from South Australia created a curriculum for schools to help teach students better interoception skills. AIDE Canada joined with Dr. Wenn Lawson, an Autistic researcher from South Australia, to adapt this curriculum for an online course. Links to the full curriculum are included.
Tips for Doctors: How to Support Your Autistic Patients
This video was created by autistic self-advocates to help Doctors better support their autistic patients. It provides some tips about how to avoid several common negative experiences that autistic self advocates have encountered in healthcare settings. Doctors in a hurry can enjoy this quick video.
A Self-Advocate’s Reflection on the Use of Technology to Support Executive Functioning
This toolkit offers information about how technology can support executive function in people with developmental disabilities. This resource provides information about how the brain works and common or new technological advances such as apps and programs available on your tablet or device to support everyday success.
Tips for Doctors: How to Connect Better with Your Autistic Patients
Autistic people have different sensitivities, struggles, and needs than one other and everyone else. It is important to know, accept, and accommodate struggles that autistic people may work with in order to make their experience with you more comfortable. It will also help you to assess, diagnose, and treat your patients more effectively. Here are some things that doctors should know and can do when treating autistic patients.
What are Diagnosis and Supports?
In support of the National Autism Conference, this infographic and video and infographic explain “What is a Diagnosis?" and "What are some autism supports?". The accessible language series was created to help individuals with intellectual disability participate more meaningfully in the development of the National Autism Strategy.
DOHaD 2022: Early Adverse Childhood Experiences and Sleep
Children with developmental disabilities are more likely to experience Adverse Childhood Experiences (ACEs) than their neurotypical peers. A common health issue in people with a history of childhood trauma is insomnia, with trouble getting to sleep quickly and an inability to stay asleep both being problematic. ACEs can affect the ability to sleep soundly through the night well into adulthood, with the more ACEs a person experiences, the less sleep they get. Researchers are looking at the role sleep plays in the long-term health impact of ACEs, and what can be done to protect the physical and mental health of individuals who had a high number of ACEs growing up.
DOHaD 2022: Fetal Alcohol Spectrum Disorder and Chronic Low-Grade Inflammation
People with Fetal Alcohol Spectrum Disorders (FASD) may have a range of physical, behavioural, and/or learning challenges. Most studies have explored learning and behavioural challenges in children, so not much is known about FASD in adults. More studies are needed to understand the long-term health effects of prenatal alcohol exposure in adults. Some researchers are suggesting that FASD be considered a ‘whole-body’ diagnosis after a survey of adults with FASD found higher rates of physical health issues. This means that doctors should screen patients with FASD more carefully for certain physical and mental health issues as they age. Autoimmune disorders caused by chronic inflammation, like rheumatoid arthritis and lupus, are more common for people with FASD, but researchers are still trying to understand why.
Self-Injurious Behaviours in Children: Advice for Doctors from a Doctor
Few medical professionals have experience with patients with complex behaviours like Self-Injurious Behaviours (SIB). This video features advice for paediatricians from Dr Anamaria Richardson, a paediatrician attached to the groundbreaking Self-Injurious Behaviours Clinic at BC Children's Hospital. She, a parent, and a behavioural specialist all share their experiences with SIB and how proper support can improve the lives of patients and their families.
Getting an Autism Test and Diagnosis as an Adult in Manitoba
This video developed by Matt Derraugh talks about how to get an autism test and diagnosis as an adult in Manitoba. The perspectives of other self advocates from the autism community provide insight into the experiences of adults seeking an ASD diagnosis in Manitoba.