Black Autistic Journey on the Spectrum
Participants will discuss how systemic issues such as limited race-based data and a lack of culturally informed practices and how it contributes to misdiagnoses, mistreatment, and disparities in education. The conversation will also highlight how regional, cultural, and family differences shape experiences within healthcare and education systems. By drawing on diverse perspectives and emerging research, the session aims to deepen understanding of these complex intersections. The session will emphasize actionable strategies for addressing systemic barriers and improving outcomes for Black autistic Canadians. Participants will leave with tools to advocate for equity, data transparency, and culturally responsive supports.
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Presenters
Jerome Allridge
Jerome Allridge is a Black autistic self-advocate dedicated to advancing equity in health care and education for Black neurodivergent individuals. He emphasizes the importance of clear communication and honoring each person’s unique needs. Although he can speak, he prefers to connect through written communication, where he can most authentically express his ideas and experiences. Through this panel, Jerome will encourage professionals and communities to build understanding and foster truly inclusive environments for all.
Rosemarie Jordan - Parent & Care Navigator for Autistic Teen
Born in Edmonton, Rosemarie’s world was a blend of many cultures as was her, being biracial—Black and White—her close family friends also came from a variety of backgrounds. In contrast, despite the growing national focus on multiculturalism in the 1970s, Alberta's provincial make-up remained predominantly homogeneous and white, making it a less welcoming environment for diverse cultures.
Having grown up on the margins, she saw and experienced the world from a different perspective, and this journey of overcoming adversity shaped her ability to be resilient in an often-unforgiving world. These life experiences gave her a unique understanding of the difficulties faced by her son, who also doesn’t fit the standard mold. As such, Rosemarie fell naturally into the role of “Care Navigator”.
Having learned to navigate her own challenges, the expertise and flexibility in her skill development empowered her to navigate through the complex health-care system to overcome barriers in accessing quality care and treatment (e.g., arranging financial support, coordinating among providers and settings) in home, community and education settings. On a micro level, she translates her son’s wishes & needs for support to identify the right services and providers. On a meso level, she collaborates with other care, education and social service providers to provide direction and goal setting. And on a macro level, she has acted to remove barriers to effective care in various types of health services, social care, education and community services laying the groundwork for strategic direction and creating pathways for care and access to resources.
Zalika Scott-Ugwuegbula, BSc (Hons), M.Ed. (she/her)
Zalika Scott-Ugwuegbula, BSc (Hons), M.Ed. (she/her), is an autistic second-year doctoral student in Psychological Studies of Education - Research at the University of Alberta. Her research examines how the interlocking forces of race, racism, and ableism shape the educational experiences of Black autistic students. Zalika’s research interests include the intersection of race and disability, Black studies in education, anti-Black racism, and autism and Black identity in education within the Canadian context.
Zalika seeks to understand how colonialism, racial capitalism, ableism, and white supremacy operate in conjunction and are implicated in the systemic inequities that influence the schooling experiences of Black autistic youth. Grounded in intersectionality, her work not only interrogates the systems of power that subjugate and marginalize Black disabled learners but also aims to inform inclusive and culturally responsive educational practices and policy reforms.
Dr. Nonsikelelo Mathe
Dr. Nonsi Mathe is a mum, scientist, and social purpose entrepreneur deeply committed to creating healthcare that truly works for everyone. She is the Scientific Director of Health Equity & Systems Transformation at the Cumming School of Medicine, University of Calgary, and a Senior Atlantic Fellow for Health Equity. Her work spans chronic disease epidemiology, neurodiversity, and systems change—with over ten years of experience blending rigorous research with real-world advocacy and community voices.
Nonsi is also the founder of Gateway Holistic Care, a respite and supported living agency. where her vision comes alive through inclusive, person - centered programs for people with developmental disabilities and autism.
In this panel, Dr Mathe will discuss her research that explores health care utilization among autistic individuals in Alberta.
Moderator: Douglas Parsons - Training and Resource Manager, Autism Edmonton
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