This Toolkit is intended to inform educators, parents, and yet-to-be diagnosed females, transgendered and nonbinary individuals about an alternative presentation of autism. The ratio of males to females appears to be much lower than previously thought. Obstacles to diagnosing those who do not present with the male phenotype are revealed, and the overlap with sexual and gender minorities and with eating disorders are exposed. Problems with the classification system and diagnostic tools are illuminated and alternative tools are identified.
Neurodivergent persons have a higher risk of being diagnosed with Post-traumatic Stress Disorder (PTSD) and have higher rates of sexual abuse than their neurotypical peers. This toolkit was a direct request from focus groups with autistic self-advocates. PTSD can be extremely challenging, but there are resources available to help. We have made every effort to avoid triggering persons while still providing relevant and useful information. There are also additional resources and suggested readings at the end of the toolkit if you would like to learn more about this topic. This toolkit is broken into two parts: 1) Understanding Post-traumatic Stress Disorder (PTSD), and 2) Moving Forward from PTSD.
The Developmental Disabilities Primary Care Program of Surrey Place Toronto published a tool called HELP with Behaviours that Challenge (HELP) to help primary care providers and other individuals who support people with IDD implement this approach into practice.
The HELP tool provides a framework that promotes an in-depth exploration of the underlying causes of symptoms and behaviours, even if they appear to meet the criteria for psychiatric disorders. The tool offers a multi-perspective evaluation of situations where those disorders, such as anxiety and depression, may be present. Primary care providers can anticipate and alleviate patient distress with the comprehensive framework
Written by a parent for parents, this toolkit offers considerations in seeking safety for one's child with autism. Areas in which an autistic individual may grapple with issues of safety are addressed, along with ideas for moving forward well and developing a safety plan.
Self-injurious behaviours (SIB) frequently occur in children and adolescents with developmental disabilities. These are often called "complex" behaviours as there can be multiple reasons a person may be engaging in them and it can be difficult to know how best to support the individual to stop causing themselves injury. In this toolkit, we describe the reasons SIB may occur, ways you can help professionals narrow down the causes of the behaviour, and suggestions on how to reach out to specialists who may be able to help.
The International Society for Autism Research (INSAR) is the largest autism research conference in the world. At this year's conference, the topic of chronic pain in autism was explored by researchers from various fields. One presentation explored how Central Sensitivity Syndrome (CSS) relates to autism. CSS is an umbrella term for a group of health conditions that include chronic pain issues. The presenting researchers found that autistic individuals were more likely to be diagnosed with conditions that are commonly found in CSS, suggesting that there is a great deal of overlap between symptoms of CSS and the physical health and mental health conditions commonly associated with autism. Links to useful screening tools are provided so individuals can bring their concerns regarding pain management up with their doctors.
This toolkit explains privacy rights with your personal medical information in Canada. This toolkit provides answers to common and important questions about rights, access and use of this health information. Included are questions to consider asking your healthcare provider if you are unclear about what happens and who has access to your personal health information.
Have you ever wondered how common mental health-related medications work? In this short animation, AIDE Canada describes how medications for depression, anxiety, or ADHD do their job and their impact on certain regions in the brain.
Welcome to AIDE Canada & Partners one stop shop for teens and the many transitions required of them. Here we cover everything from health, both mental and physical, to healthy relationships, and what they entail, to funding and how to plan for success!
Hear first-hand accounts from paid caregivers and community support workers providing services to aging Indigenous adults with IDD. Conversations will focus on the strengths and challenges of small and/or remote communities in Northern Ontario including creative problem solving and the importance of relationship building and cultural competency when providing services. Persons with intellectual and developmental disabilities (IDD) are living longer and more fulfilled lives, but what are the challenges of aging with a disability?
Anxiety and Depression are the two most common mental health conditions for people with developmental disabilities. This short animated video walks viewers through two popular, evidence-based practices that can help us feel better when we are struggling. The script was written, developed, and narrated by Dr. Fakhri Shafai of AIDE Canada.
Autistic individuals are more likely to experience mental health challenges than the general population, yet there are few studies that focus on the best mental health approaches for those on the autism spectrum. This toolkit provides background on mental health treatments that are backed by research. The toolkit also provides helpful summaries and reflection questions to help you decide which mental health approach(es) to pursue.
This article summarizes a study that found some families have multiple children with autism. Researchers suggest a genetic link to autism. This experience of having more than one child with autism can be complex as the experiences and needs of each individual with autism are unique.
This study examined biological processes that may lie beneath behaviour and gastrointestinal issues relative to autism. Along with offering study outcomes, further research is noted to be needed to clarify this relationship. It is noted in this summary that “caution should be advised against the use of popular nutritional supplements and over-the-counter substances in the treatment of ASD without first consulting a physician.”
This video and resouce sheet were created by a self advocate from the autism community. It discusses personal experieces of self advocates , as well as options and considerations for building a circle of social supports in Manitoba. This resource was developed in partnership with Autism Calgary.
Autism and anxiety often go hand in hand. Many children with autism also have anxiety disorders. How is anxiety different alongside autism? How is it the same? What can we do about it…and when? How do we know if it's serious? Please join Autism Yukon and Dr. Kerns for an interactive, FREE, live webinar addressing these topics.
This article summarizes a study where parents of toddlers with autism helped to examine child sensory over-responsivity (SOR). The researchers address parenting stress and restrictions of activities linked with SOR.
This article summarizes a study that examined support groups and their impact for parents of children with autism. Overall, support groups were reported to be helpful.
This article summarizes a study where focus groups were held with youth and young adults (15-25 years) about their health-related transitional needs in moving to adult care. Separate focus groups were conducted with caregivers.
Social situations can be hard to navigate, especially if you are unsure if a person is treating you with respect or not. In this interactive video series, we present you with social situations that autistic self-advocates identified as being confusing or hard to respond to. You can choose how you think you should respond to these situations and then see a possible outcome.