Autism: It's Not Just for Males Anymore
This Toolkit is intended to inform educators, parents, and yet-to-be diagnosed females, transgendered and nonbinary individuals about an alternative presentation of autism. The ratio of males to females appears to be much lower than previously thought. Obstacles to diagnosing those who do not present with the male phenotype are revealed, and the overlap with sexual and gender minorities and with eating disorders are exposed. Problems with the classification system and diagnostic tools are illuminated and alternative tools are identified.
Neurodivergence and Post-traumatic Stress Disorder from Sexual Assault: A Toolkit for Moving Forward- PART 1
Neurodivergent persons have a higher risk of being diagnosed with Post-traumatic Stress Disorder (PTSD) and have higher rates of sexual abuse than their neurotypical peers. This toolkit was a direct request from focus groups with autistic self-advocates. PTSD can be extremely challenging, but there are resources available to help. We have made every effort to avoid triggering persons while still providing relevant and useful information. There are also additional resources and suggested readings at the end of the toolkit if you would like to learn more about this topic. This toolkit is broken into two parts: 1) Understanding Post-traumatic Stress Disorder (PTSD), and 2) Moving Forward from PTSD.
Intellectual and Developmental Disability Health Check Tool- A Resource for Doctors to Support Patients with IDD
Health checks are comprehensive health reviews that family physicians can use with patients to provide additional preventative and proactive care. They can include a physical examination, prevention, or screening. Health checks are particularly beneficial to adults with Intellectual and/or Developmental Disabilities (IDD). The Developmental Disabilities Primary Care Program of Surrey Place Toronto published a tool called the "IDD Health Check" tool to support physicians. The tool includes practical information, including a point-of-care form, tips, and links to additional tools. It provides supplementary information based on the experiences of family doctors and practice tips from physicians with experience providing care to adults with IDD.
HELP with Behaviours that Challenge: A Tool for Primary Care Providers
The Developmental Disabilities Primary Care Program of Surrey Place Toronto published a tool called HELP with Behaviours that Challenge (HELP) to help primary care providers and other individuals who support people with IDD implement this approach into practice. The HELP tool provides a framework that promotes an in-depth exploration of the underlying causes of symptoms and behaviours, even if they appear to meet the criteria for psychiatric disorders. The tool offers a multi-perspective evaluation of situations where those disorders, such as anxiety and depression, may be present. Primary care providers can anticipate and alleviate patient distress with the comprehensive framework
Supporting individuals with Developmental Disabilities: A course for firefighters on how best to support individuals and their families to maximize the likelihood of successful outcomes
Firefighters often respond to calls to support persons with developmental disabilities. Richmond Fire Rescue and the Pacific Autism Family Network in British Columbia have been providing in-person training to first responders since 2009. We have adapted this training to create an online course so firefighters across Canada can have access to this potentially life-saving information. Firefighters can learn strategies to best support and de-escalate difficult situations and maximize the likelihood of successful outcomes.
Emergency Calls: Advice for Families from a Parent & Firefighter
It can be difficult to know how best to support firefighters during emergency calls for your loved one. No one knows that better than Captain Harold Kiesewetter of Richmond Fire Rescue in British Columbia. He is a parent of an autistic child and has been training first responders in BC on how best to support people with developmental disabilities during an emergency. In this short video, Captain Kiesewetter shares some of his experiences and offers advice on what you can do to make sure emergency situations have the best outcome possible.
Promoting Decision-Making Capabilities in Healthcare - A Tool for Clinicians
This article provides an introduction and links to the Promoting Capabilities tool created by Surrey Place and in consultation with leading clinicians in Canada. This tool guides clinicians in shifting the focus from assessing what adults with IDD can or cannot do independently to evaluating and addressing the accommodations and support for decision making that they need to be involved as much as possible in reaching decisions about acceptable and preferred healthcare interventions. The Promoting Capabilities tool mitigates ableism present in the healthcare and legal systems by recognizing that adults with IDD have a range of decision-making capabilities.
Exploring Physical Health and Aging in Autism
Physical health is something most people worry about as they age, but few research studies have focused on healthy aging in autistic individuals. Join us for this webinar with experts from around the world as they discuss what we know, what we need to know, and what future directions research studies should take in order to better support autistic adults as they approach their senior years.
Nunavut - We Have an ASD Diagnosis, Now What?
This booklet is helpful for families and individuals who have recently received a diagnosis and want to know what services and/or resources are available to them in Nunavut. It was produced through collaboration between Autism Yukon and the Nunavummi Disabilities Makinnasuaqtiit Society.
Keeping Them Safe: An Overview of Safety Concerns and Suggested Strategies for Families with Children with Developmental Disabilities
Keeping children safe is a major concern for most parents, but keeping children with developmental disabilities safe can present some unique challenges and considerations. In this online course developed by parents and professionals, we present some common concerns and scenarios while providing strategies to keep you and your family safe.
Ensuring Safety: A Parent’s Perspective
Written by a parent for parents, this toolkit offers considerations in seeking safety for one's child with autism. Areas in which an autistic individual may grapple with issues of safety are addressed, along with ideas for moving forward well and developing a safety plan.
Understanding Complex Self-Injurious Behaviours
Self-injurious behaviours (SIB) frequently occur in children and adolescents with developmental disabilities. These are often called "complex" behaviours as there can be multiple reasons a person may be engaging in them and it can be difficult to know how best to support the individual to stop causing themselves injury. In this toolkit, we describe the reasons SIB may occur, ways you can help professionals narrow down the causes of the behaviour, and suggestions on how to reach out to specialists who may be able to help.
INSAR 2022: Mental Health Conditions and Autism Among Females: Emerging Evidence about Comorbid Diagnosis
The International Society for Autism Research (INSAR) is the largest autism research conference in the world. At this year's conference, the topic of mental health conditions in autistic males and females was discussed. Rates of comorbid diagnosis, meaning being diagnosed with more than one health or mental health condition, are higher for autistic individuals compared to the general population. Few research studies have looked at these rates in autistic males vs. females. Researchers found that autistic females were more likely than autistic males to have one or more comorbid diagnoses. Potential reasons for the difference are discussed along with links to a self-assessment questionnaire and additional resources.
Picky Eaters Webinar
This workshop will begin by discussing some of the common myths around mealtimes for children with ASD, as well as explore different types of eating behaviours. We will then “dig in” and describe a model for why picky eating develops, which includes physiology, motor skills, and/or learned behaviours. To conclude, the workshop speakers will share and discuss some general strategies for caregivers and parents to take home and apply.
INSAR 2022: Motor Skills Problems in Autism: Emerging Evidence about Long-term Effects and Screening Children for Developmental Coordination Disorder
The International Society for Autism Research (INSAR) is the largest autism research conference in the world. At this year's conference, the topic of motor skills difficulties in autism was explored by researchers from various fields. One presentation discussed the barriers to timely diagnosis and the long-term impact of motor issues for autistic adults. The second presentation discussed Developmental Coordination Disorder (DCD) and the use of a screening tool in assessing autistic children for DCD. Links to useful screening tools are provided so individuals can bring their concerns regarding DCD to their doctor.